| What are the Educational Options?
The Individuals with Disabilities Education Act
of 1990 assures a free and appropriate public education to children with
diagnosed learning deficits. The 1991 version of the law extended services
to preschoolers who are developmentally delayed. As a result, public schools
must provide services to handicapped children including those age 3 to
5. Because of the importance of early intervention, many states also offer
special services to children from birth to age 3.
The school may also be responsible for providing whatever
services are needed to enable the child to attend school and learn. Such
services might include transportation, speech therapy, occupational therapy,
and any special equipment. Federally funded Parent Training Information
Centers and Protection and Advocacy Agencies in each state can provide
information on the rights of the family and child.
By law, public schools are also required to prepare
and carry out a set of specific instructional goals for every child in
a special education program. The goals are stated as specific skills that
the child will be taught to perform. The list of skills make up what is
known as an "IEP"-the child's Individualized Educational Program.
The IEP serves as an agreement between the school and the family on the
educational goals. Because parents know their child best, they play an
important role in creating this plan. They work closely with the school
staff to identify which skills the child needs most.
In planning the IEP, it's important to focus on what
skills are critical to the child's well-being and future development.
For each skill, parents and teachers should consider these questions:
Is this an important life skill? What will happen if the child isn't trained
to do this for herself?
Such questions free parents and teachers to consider
alternatives to training. After several years of valiant effort to teach
Alan to tie his shoelaces, his parents and teachers decided that Alan
could simply wear sneakers with Velcro fasteners, and dropped the skill
from Alan's IEP. After Alan struggled in vain to memorize the multiplication
table, they decided to teach him to use a calculator.
A child's success in school should not be measured
against standards like mastering algebra or completing high school. Rather,
progress should be measured against his or her unique potential for self-care
and self-sufficiency as an adult.
| Adolescence
For all children, adolescence is a time
of stress and confusion. No less so for teenagers with autism.
Like all children, they need help in dealing with their budding
sexuality. While some behaviors improve in the teenage years,
some get worse. Increased autistic or aggressive behavior may
be one way some teens express their newfound tension and confusion.
The teenage years are also a time when children
become more socially sensitive and aware. At the age that most
teenagers are concerned with acne, popularity, grades, and dates,
teens with autism may become painfully aware that they are different
from their peers. They may notice that they lack friends. And
unlike their schoolmates, they aren't dating or planning for a
career. For some, the sadness that comes with such realization
urges them to learn new behaviors. Sean Barron, who wrote about
his autism in the book, There's a Boy in
Here, describes how the pain of feeling different
motivated him to acquire more normal social skills.
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