| Can Autism be Outgrown?
At present, there is no cure for autism. Nor
do children outgrow it. But the capacity to learn and develop new skills
is within every child.
With time, children with autism mature and new strengths
emerge. Many children with autism seem to go through developmental spurts
between ages 5 and 13. Some spontaneously begin to talk-even if repetitively-around
age 5 or later. Some, like Paul, become more sociable, or like Alan, more
ready to learn. Over time, and with help, children may learn to play with
toys appropriately, function socially, and tolerate mild changes in routine.
Some children in treatment programs lose enough of their most disabling
symptoms to function reasonably well in a regular classroom. Some children
with autism make truly dramatic strides. Of course, those with normal
or near-normal intelligence and those who develop language tend to have
the best outcomes. But even children who start off poorly may make impressive
progress. For example, one boy, after 9 years in a program that involved
parents as co-therapists, advanced from an IQ of 70 to an IQ of 100 and
began to get average grades at a regular school.
While it is natural for parents to hope that their
child will "become normal," they should take pride in whatever
strides their child does make. Many parents, looking back over the years,
find their child has progressed far beyond their initial expectations.
Can Adults with Autism Live Independent Lives?
The majority of adults with autism need lifelong
training, ongoing supervision, and reinforcement of skills. The public
schools' responsibility for providing these services ends when the person
is past school age. As the child becomes a young adult, the family is
faced with the challenge of creating a home-based plan or selecting a
program or facility that can offer such services.
In some cases, adults with autism can continue to live
at home, provided someone is there to supervise at all times. A variety
of residential facilities also provide round-the-clock care. Unlike many
of the institutions years ago, today's facilities view residents as people
with human needs, and offer opportunities for recreation and simple, but
meaningful work. Still, some facilities are isolated from the community,
separating people with autism from the rest of the world.
Today, a few cities are exploring new ways to help
people with autism hold meaningful jobs and live and work within the wider
community. Innovative, supportive programs enable adults with autism to
live and work in mainstream society, rather than in a segregated environment.
By teaching and reinforcing good work skills
and positive social behaviors, such programs help people live up to their
potential. Work is meaningful and based on each person's strengths and
abilities. For example, people with autism with good hand-eye coordination
who do complex, repetitive actions are often especially good at assembly
and manufacturing tasks. A worker with a low IQ and few language skills
might be trained to work in a restaurant sorting silverware and folding
napkins. Adults with higher-level skills have been trained to assemble
electronic equipment or do office work.
Based on their skills and interests, participants in
such programs fill positions in printing, retail, clerical, manufacturing,
and other companies. Once they are carefully trained in a task, they are
put to work alongside the regular staff. Like other employees, they are
paid for their labor, receive employee benefits, and are included in staff
events like company picnics and retirement parties. Companies that hire
people through such programs find that these workers make loyal, reliable
employees. Employers find that the autistic behaviors, limited social
skills, and even occasional tantrums or aggression, do not greatly affect
the worker's ability to work efficiently or complete tasks.
Like any other worker, program participants live in
houses and apartments within the community. Under the direction of a residence
coach, each resident shares as much as possible in tasks like meal-planning,
shopping, cooking, and cleanup. For recreation, they go to movies, have
picnics, and eat in restaurants. As they are ready, they are taught skills
that make them more personally independent. Some take pride in having
learned to take a bus on their own, or handling money they've earned themselves.
Job and residence coaches, who serve as a link between the program participants
and the community, are the key to such programs. There may be as few as
two adults with autism assigned to each coach. The job coach demonstrates
the steps of a job to the worker, observes behavior, and regularly acknowledges
good performance. The job coach also serves as a bridge between the workers
with autism and their co-workers. For example, the coach steps in if a
worker loses self-control or presents any problems on the job. The coach
also provides training in specific social skills, such as waving or saying
hello to fellow workers. At home, the residence coach reinforces social
and self-help behaviors, and finds ways to help people manage their time
and responsibilities.
At present, about a third of all people with autism
can live and work in the community with some degree of independence. As
scientific research points the way to more effective therapies and as
communities establish programs that provide proper support, expectations
are that this number will grow.
|